Opinion | Shining light on Body-Focused Repetitive Behaviors
Bringing awareness to disorders and conditions can help both those suffering and those watching from the outside.
October 4, 2022
Oct. 1—7 is Body-Focused Repetitive Behavior awareness week.
Many people may not know what this week is or why it’s important, but I do.
The TLC Foundation for Body-Focused Repetitive Behavior is a health-related human services organization dedicated to serving individuals experiencing this condition. “Any repetitive self-grooming behavior that involves biting, pulling, picking, or scraping one’s own hair, skin, lips, cheeks, or nails that can lead to physical damage to the body and have been met with multiple attempts to stop or decrease the behavior,” the TLC Foundation states on its website.
I have battled Trichotillomania — hair pulling — since the third grade. Because of this, I have never been without a bald spot somewhere on my body, whether that be on my scalp, eyebrows, or eyelashes.
Body-Focused Repetitive Behavior can be stressful and isolating. For most of my life I felt a profuse amount of shame and anxiety over my appearance.
While my Body-Focused Repetitive Behavior has been under control for just over a year, I still feel its lasting effects. This can take different forms, like asking for reassurance that my bald spots look OK or touching the back of my head to make sure previous bald spots are not visible.
I am just now learning how to style my hair like most girls do — I could only wear my hair in a bun and headband for seven years out of fear of ridicule.
My experience with Body-Focused Repetitive Behavior made me feel like an outsider. Therefore, I believe awareness weeks like this one are important. Everybody deserves to feel like they belong, and awareness days, weeks, and months pull people back into the bubble of society.
This awareness week gives those who are struggling a chance to take baby steps back into society and teach those on the outside to be a understanding.
Awareness can help people give their experiences a name. In fact, it’s estimated that around 3 percent of the world’s population will experience living with a Body-Focused Repetitive Behavior at least once in their life.
The TLC Foundation for Body-Focused Repetitive Behavior is the hub to learn about this condition. They have sections of their website dedicated to learning about the disorder, links to providers, salons, and groups that have experience helping people with Body-Focused Repetitive Behaviors.
One helpful tool for people experiencing Body-Focused Repetitive Behavior is the National Body-Focused Repetitive Behavior Conference. Because of COVID-19, it has been online since 2020. However, the 2023 conference will be held in-person.
This year, the conference will be held during Body-Focused Repetitive Behavior Awareness Week, so you can join some of the online sessions they offer from now until Oct. 7.
I have attended this conference twice in my life, and I hope to return in-person next year. Beside all the support groups and panels I went to, I got to spend three days with people who were just like me. For once in my life, I wasn’t alone.
Belonging is an indescribable feeling. I hope awareness and advocacy will prevent individuals in similar circumstances from feeling alone.
Columns reflect the opinions of the authors and are not necessarily those of the Editorial Board, The Daily Iowan, or other organizations in which the author may be involved.